When the Time Comes To Talk About HIV: Factors Associated With Diagnostic Disclosure and Emotional Distress in HIV-Infected Children
- 1 November 2002
- journal article
- research article
- Published by Wolters Kluwer Health in JAIDS Journal of Acquired Immune Deficiency Syndromes
- Vol. 31 (3) , 309-317
- https://doi.org/10.1097/00126334-200211010-00006
Abstract
To determine factors related to the timing and probability of nondisclosure of HIV status to perinatally HIV-infected children, and to explore factors associated with emotional distress in HIV-infected children. Methods: This is a cross-sectional study of 51 HIV-infected children based on medical records, parent interviews, and child assessments. 1) Probability of earlier age of disclosure is associated with higher child IQ (p = .04) and more family expressiveness (p = .01); 2) controlling for child age, disclosure status at time of study is associated with major life events, but not with medical status; and 3) factors associated with increased parent-rated anxiety in HIVinfected children in univariate analyses are: HIV disclosure (p = .04), other major life events (p = .001), higher medication dose frequency (p = .01), and child age (p = .01). Increased depression is associated only with more medication doses (p = .02). These data indicate that higher child IQ and greater family expressiveness increase the probability of earlier diagnostic disclosure to HIV-infected children. Factors associated with emotional distress highlight important areas of clinical attention. These data suggest that diagnostic disclosure may not necessarily minimize emotional distress, indicating the need for further evaluation of the appropriate timing and type of disclosure for pediatric HIV.Keywords
This publication has 28 references indexed in Scilit:
- Diagnostic Disclosure to HIV-Infected Children: How Parents Decide when and what to TellClinical Child Psychology and Psychiatry, 2002
- Early Cognitive and Motor Development Among Infants Born to Women Infected With Human Immunodeficiency VirusPediatrics, 2000
- Disclosure of Illness Status to Children and Adolescents With HIV InfectionPediatrics, 1999
- Parent- and self-ratings of anxiety in children with mental retardation: Agreement levels and test-retest reliabilityResearch in Developmental Disabilities, 1996
- What Do You Say to a Child with AIDS?Hastings Center Report, 1993
- Does “Telling” Less Protect More? Relationships Among Age, Information Disclosure, and What Children with Cancer See and FeelJournal of Pediatric Psychology, 1991
- Psychological aspects of cancer in children, adolescents, and their familiesClinical Psychology Review, 1984
- Assessing social support: The Social Support Questionnaire.Journal of Personality and Social Psychology, 1983
- Children's Ratings of the Stressfulness of Experiences.Developmental Psychology, 1979
- Nonparametric Estimation from Incomplete ObservationsJournal of the American Statistical Association, 1958