Parent and Child Perceptions of the Management of Juvenile Diabetes

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Abstract
Interviews were conducted with 34 children, ages 8 to 17, with insulin-dependent diabetes mellitus and their parents. Their responses to questions about responsibility for disease management were compared with each other and with independent medical staff evaluations of parent and child coping, staff evaluations of regimen compliance, biochemical indices of metabolic control, and parental estimates of metabolic control. Results suggested that (a) parents and children attached particular significance to giving insulin injections as an indication of children's independence in diabetes management; (b) diet management was a frequent source of parent-child conflict and was highly related to coping; (c) age at diabetes onset was a factor in adapting to regimen; and (d) parents' views of metabolic control differed from those of professionals.

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