Transforming AIDS: The moral management of stigmatized identity
- 1 April 1999
- journal article
- research article
- Published by Taylor & Francis in Anthropology & Medicine
- Vol. 6 (1) , 103-120
- https://doi.org/10.1080/13648470.1999.9964576
Abstract
The majority of research exploring AIDS, stigma, and identity has focused primarily on the experiences of gay men and other disenfranchised populations. Stigma, however, is an unavoidable feature of AIDS in America regardless of gender, ethnicity, or sexual orientation. Moreover, persons not represented as ‘high risk’ may feel especially threatened and demoralized by stigma when they are HIV+. This paper explores how White, middle‐class women experience HIV/AIDS, and the moral responses they mobilize to deflect stigma and reconstruct self. These women incorporate spiritualized and transformational rhetoric—AIDS as calling, redemption, and/or blessing—to organize their experience, empower self‐reconstruction, and manage stigma. Further, these women use this rhetoric, I suggest, to reconstruct and reassert a ‘safe’ and coherent moral identity. Moreover, the moral arguments implicit in this type of transformational rhetoric are self‐protective and empowering because they respond to social constructions of AIDS which essentialize people with HIV/AIDS as ‘immoral.’ Further, this spiritualized discourse may hold special appeal for these women because it symbolically defends and maintains an ‘insider’ or middle‐class identity, and satisfactorily explains why ‘bad’ things happen to ‘good’ people.Keywords
This publication has 25 references indexed in Scilit:
- Preserving a Vital and Valued Self in the Face of AIDSSociological Inquiry, 1998
- Self‐disclosure and self‐construction among HIV‐positive people: The rhetorical uses of stereotypes and sexAnthropology & Medicine, 1997
- Reconstructing My Life: Becoming a Long-Term Survivor of AIDSQualitative Health Research, 1997
- Perceptions of Stigma in Women Infected with HIVAIDS Patient Care and STDs, 1996
- Anthropology, HIV and contingent identitiesSocial Science & Medicine, 1995
- Living a responsible life: The impact of AIDS on the social indentity of intravenous drug usersSocial Science & Medicine, 1994
- The Anthropology of ExplanationAnthropological Quarterly, 1993
- Living with HIV: Resistance by Positive PeopleMedical Anthropology Quarterly, 1992
- AIDS and the dangerous other: Metaphors of sex and deviance in the representation of diseaseMedical Anthropology, 1989
- An Intensive Psychoimmunologic Study of Long‐Surviving Persons with AIDS. Pilot Work, Background Studies, Hypotheses, and MethodsaAnnals of the New York Academy of Sciences, 1987