Invited essay on the psychological aspects of genetic counseling. V. preselection: A family coping strategy in Huntington disease
- 1 November 1988
- journal article
- research article
- Published by Wiley in American Journal of Medical Genetics
- Vol. 31 (3) , 617-621
- https://doi.org/10.1002/ajmg.1320310316
Abstract
Preselection refers to the “sick” -role assignment given to an asymptomatic individual in a family in which a genetic or other disorder with multiple uncertainties occurs. The selection process is made, often when the preselected person is still a child, without knowledge of who eventually will be affected. The process requires the collusion of the family members for its initiation and maintenance and serves as a major coping strategy to reduce or bind the stresses and anxieties engendered by uncertainty. Preselection is seen often in families in which Huntington disease occurs and is promoted by the delayed age of onset of the disorder and the uncertain gene status of the person at risk.Keywords
This publication has 3 references indexed in Scilit:
- Psychiatric implications of presymptomatic testing for Huntington's disease.Australian and New Zealand Journal of Surgery, 1987
- The dilemma of suicide and Huntington diseaseAmerican Journal of Medical Genetics, 1987
- Genetic “Russian Roulette”: The Experience of Being “At Risk” for Huntington's DiseasePublished by Elsevier ,1979