Researching the Bereaved: an investigator’s experience
- 1 January 2000
- journal article
- Published by SAGE Publications in Nursing Ethics
- Vol. 7 (1) , 23-34
- https://doi.org/10.1177/096973300000700105
Abstract
The issues discussed in this article concern the process of interviewing the bereaved relatives of organ donors, the personal impact, and the potentially painful nature of such research. Narrative interviews were carried out with 24 donor relatives. The relatively small number of donating families and their anonymity mean that little is understood about the experience of having a relative in a critical care situation that ends in donation. The purpose of this study was to develop a theory that explained the organ donation process for relatives of ‘major organ’ donors. A central concern of implementing the investigation was the possible threat it posed to the participants and myself. The sensitive nature of the research made access to relatives difficult. Undoubtedly, my nursing background and personal attributes had an impact on interactions with participants and the pursuance of the research agenda.Keywords
This publication has 21 references indexed in Scilit:
- Guidelines for conducting ethical bereavement researchDeath Studies, 1995
- Ethical issues in palliative care researchPalliative Medicine, 1994
- Benefits of Participating in Research InterviewsImage: the Journal of Nursing Scholarship, 1994
- The mortality of bereavement: A reviewPublished by Cambridge University Press (CUP) ,1993
- Experience of Bereaved Relatives Who Granted or Refused Permission for Organ DonationFamily Practice, 1992
- Ethical issues in interviewing*Journal of Advanced Nursing, 1992
- Who Participates in Bereavement Research? A Review and Empirical StudyOMEGA - Journal of Death and Dying, 1990
- Issues in Qualitative Research on Sensitive TopicsWestern Journal of Nursing Research, 1988
- Cadaver nephrectomy: an operation on the donor's family.BMJ, 1979
- Health After BereavementPsychosomatic Medicine, 1972