Prenatal Screening, Ethics and Down’s Syndrome: a literature review
- 1 July 2001
- journal article
- review article
- Published by SAGE Publications in Nursing Ethics
- Vol. 8 (4) , 360-374
- https://doi.org/10.1177/096973300100800408
Abstract
This article reviews the literature on prenatal screening for Down’s syndrome. To be evidence based, medicine and nursing have to take account of research evidence and also of how this evidence is processed through the influence of prevailing social and moral attitudes. This review of the extensive literature examines how appropriate widely-held understandings of Down’s syndrome are, and asks whether or not practitioners and prospective parents have access to the full range of moral arguments and social evidence on the matter. Highly valued ideals of justice, personal autonomy, parental choice, women’s control over their reproduction and of avoiding harm can all tend towards negative rather than neutral approaches to Down’s syndrome. This article considers how ethics and prenatal screening policies and practice that take greater account of social evidence of disability could use moral arguments that inform rather than determine the choices of people who use prenatal services.Keywords
This publication has 46 references indexed in Scilit:
- Genetic screening in maternity care: preventive aims and voluntary choicesSociology of Health & Illness, 2001
- Health care concerns and guidelines for adults with Down syndromeAmerican Journal of Medical Genetics, 1999
- Practising Partnership: Involving People with Learning Difficulties in ResearchBritish Journal of Learning Disabilities, 1998
- Down syndromeCurrent Opinion in Neurology, 1997
- Strategies for antenatal detection of Down's syndromeArchives of Disease in Childhood: Fetal & Neonatal, 1997
- Screening for Down's syndrome: experience in an inner city health districtBJOG: An International Journal of Obstetrics and Gynaecology, 1996
- Towards informed decisions about prenatal testing: A reviewPrenatal Diagnosis, 1995
- Antenatal diagnosis of congenital heart disease and Down's syndrome: the potential effect on the practice of paediatric cardiology.Heart, 1995
- Antenatal maternal serum screening for Down's syndrome: results of a demonstration project.BMJ, 1992
- Fetal nuchal translucency: ultrasound screening for chromosomal defects in first trimester of pregnancy.BMJ, 1992