Ethics in Public Health Research
- 1 June 2004
- journal article
- Published by American Public Health Association in American Journal of Public Health
- Vol. 94 (6) , 918-922
- https://doi.org/10.2105/ajph.94.6.918
Abstract
Increasingly, researchers grapple with meaningful efforts to involve communities in research, recognizing that communities are distinct from individuals. We also struggle to ensure that individual participants in research are fully protected. Community advisory boards (CABs) offer an opportunity to adopt a relationships paradigm that enables researchers to anticipate and address the context in which communities understand risks and benefits, and individuals give consent. CABs provide a mechanism for community consultation that contributes to protecting communities and fostering meaningful research. Furthermore, CABs can help us to re-create informed consent as a process. It is critical that we conduct research to understand the role of CABs in the informed consent process.Keywords
This publication has 12 references indexed in Scilit:
- Access to Resources for Substance Users in Harlem, New York City: Service Provider and Client PerspectivesHealth Education & Behavior, 2002
- Development of a “Survival” Guide for Substance Users in Harlem, New York CityHealth Education & Behavior, 2002
- The Role of Community Advisory Boards: Involving Communities in the Informed Consent ProcessAmerican Journal of Public Health, 2001
- Collaboration among community members, local health service providers, and researchers in an Urban research center in Harlem, New YorkPublic Health Reports®, 2001
- Collaboration Among Community Members, Local Health Service Providers, and Researchers in an Urban Research Center in Harlem, New YorkPublic Health Reports®, 2001
- Partnerships. Improving collaboration between researchers and communitiesPublic Health Reports®, 2000
- Involving Study Populations in the Review of Genetic ResearchJournal of Law, Medicine & Ethics, 2000
- Protecting Communities in Research: Philosophical and Pragmatic ChallengesCambridge Quarterly of Healthcare Ethics, 1999
- Mortality prediction models in intensive careCritical Care Medicine, 1991
- Ethical Principles for the Conduct of Human Subject Research: Population-Based Research and EthicsLaw, Medicine and Health Care, 1991