Prader-Willi syndrome: Quality of life issues in home, school and community
- 1 January 1993
- journal article
- research article
- Published by Taylor & Francis in Australia and New Zealand Journal of Developmental Disabilities
- Vol. 18 (4) , 253-260
- https://doi.org/10.1080/07263869300035021
Abstract
Psycho-social aspects of Prader-Willi syndrome (PWS) can have a profound effect on individual and family well-being, and often become home, school and community concerns. Quality of life considerations for parents and people with PWS are implicit in all aspects of syndrome management. Current quality of life research is reviewed and suggestions made for future research directions.Keywords
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