Family Caregiving in Cancer Pain Management
- 1 June 1999
- journal article
- research article
- Published by Mary Ann Liebert Inc in Journal of Palliative Medicine
- Vol. 2 (2) , 185-195
- https://doi.org/10.1089/jpm.1999.2.185
Abstract
The experience of cancer pain is known to greatly affect family caregivers as well as patients. There are many demands placed on caregivers of cancer patients with pain at home as a result of the shifting of care from the acute setting to the home. These complex demands significantly affect caregiver quality of life. The purpose of this study was to describe the experience of pain management from the perspective of family caregivers of patients with cancer amidst the current healthcare environment. This quasi-experimental study involved 231 family caregivers of patients with cancer pain receiving home care. Family caregivers were assessed in conjunction with a pain education program that provided patient and. family education regarding pain assessment, drug and nondrug interventions. Assessment measures used were the Quality of Life (QOL)—Family Caregiver Tool, Knowledge and Attitudes about Pain (K&A) Tool, and Caregiver Finances Tool. Study findings reveal disruption to family caregiver quality of life in the areas of physical, psychological, social, and spiritual well-being. There is also a continued need for education regarding cancer pain management. Comparison between patients and family caregivers demonstrates that pain impacts both the patient experiencing it and their caregivers.Keywords
This publication has 17 references indexed in Scilit:
- Family and Caregiver Involvement in Pain ManagementClinics in Geriatric Medicine, 1996
- Emotional distress and hope in lung cancer patients, as perceived by patients, relatives, physicians, nurses and interviewersPsycho‐Oncology, 1995
- Psychosocial issues in palliative care: The patient, the family, and the process and outcome of careJournal of Pain and Symptom Management, 1995
- Bringing the Hospital Home Ethical and Social Implications of High-Tech Home CareHastings Center Report, 1994
- Human and indirect costs of home careNursing Outlook, 1994
- Cost issues related to pain management: Report from the cancer pain panel of the agency for health care policy and researchJournal of Pain and Symptom Management, 1994
- Development and Evaluation of the Family Pain QuestionnaireJournal of Psychosocial Oncology, 1993
- Pain management at home Struggle, comfort, and missionCancer Nursing, 1993
- Nurses caring for the terminally ill in the community: a review of the literatureInternational Journal of Nursing Studies, 1991
- Palliative careCancer Nursing, 1991