Ethical issues in genetic research: disclosure and informed consent
- 1 January 1997
- journal article
- Published by Springer Nature in Nature Genetics
- Vol. 15 (1) , 16-20
- https://doi.org/10.1038/ng0197-16
Abstract
As research to correlate genetic status with predisposition to disease has accelerated, so has the concern that participation in such studies creates the risk of genetic discrimination and emotional distress. There is a need to broaden disclosure during the consent process to ensure that potential subjects understand these risks and other issues and to address them in the consent form. We describe the broad approach that we have taken in regard to disclosure and consent in gene mapping studies.Keywords
This publication has 9 references indexed in Scilit:
- Informed Consent for Genetic Research on Stored Tissue SamplesJAMA, 1995
- Research and Stored TissuesJAMA, 1995
- Research and stored tissues. Persons as sources, samples as persons?Published by American Medical Association (AMA) ,1995
- Informed consent for genetic research on stored tissue samplesPublished by American Medical Association (AMA) ,1995
- Genetic Discrimination and Health Insurance: An Urgent Need for ReformScience, 1995
- The Genetic Privacy Act and commentaryPublished by Office of Scientific and Technical Information (OSTI) ,1995
- The Ethics of Prediction: Genetic Risk and the Physician–Patient RelationshipGenome Science and Technology, 1995
- Genetic Counseling for Families With Inherited Susceptibility to Breast and Ovarian CancerJAMA, 1993
- Genetic counseling for families with inherited susceptibility to breast and ovarian cancerJAMA, 1993