The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples
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- 15 July 2010
- journal article
- Published by Massachusetts Medical Society in New England Journal of Medicine
- Vol. 363 (3) , 204-207
- https://doi.org/10.1056/nejmp1005203
Abstract
On April 20, 2010, Arizona State University (ASU) agreed to pay $700,000 to 41 members of the Havasupai Indian tribe to settle legal claims that university researchers improperly used tribe members' blood samples in genetic research.1 The settlement closes a difficult chapter for both parties but leaves open a bedeviling question for genetic research: What constitutes adequate informed consent for biospecimens collected for research to be stored and used in future, possibly unrelated studies? The case illuminates the clashing values that have driven debate in this area and the importance of understanding the study population's perspectives.The Havasupai suit stemmed . . .Keywords
This publication has 2 references indexed in Scilit:
- Rules for Donations to Tissue Banks — What Next?New England Journal of Medicine, 2008
- One-time general consent for research on biological samplesBMJ, 2006