Knowledge of Welfare Reform Program Provisions Among Families of Children With Chronic Conditions

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Abstract
Objectives. This study examined the knowledge of and application for health-related welfare program provisions among beneficiaries with children who have chronic conditions. Methods. We administered a survey to 143 parents of children aged 3 to 16 years with asthma or sickle cell anemia in 2 clinical settings. Results. Respondents indicated incomplete knowledge of work requirements (69.9%) and work exemptions (50.3%). Applications for work exemptions were rare, even among Supplemental Security Income recipients (30%). Conclusions. Welfare beneficiaries with children who have chronic conditions show limited knowledge and use of program provisions, placing them at risk for penalties or benefit termination.