Tanzania: AIDS care – learning from experience

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Abstract
Given heterosexual transmission and mother to child transmission, AIDS often strikes more than once within the same family. This is debilitating but can also be a learning experience for carers whose knowledge might then be a resource for the community. This article describes a pilot study into the experience of 21 main care providers in families with chronically ill people suffering mainly from AIDS, each one having cared for and supported more than one patient. During the study 46 out of 51 patients who were cared by these 21 care providers had already died. Respondents provided information on care and support given to the first patient and how much they were prepared and experienced at giving quality care to the next patient. This study provides data from in‐depth interviews conducted between April and June 1999 in a suburb of Mwanza, a city in northwestern Tanzania.

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