An exploration of dignity in palliative care
Open Access
- 1 April 2003
- journal article
- research article
- Published by SAGE Publications in Palliative Medicine
- Vol. 17 (3) , 263-269
- https://doi.org/10.1191/0269216303pm699oa
Abstract
This paper presents a qualitative study exploring the meaning of ‘dignity’ to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multiprofessional team. A phenomenological approach to data analysis was adopted. Dignity was found to be a complex phenomenon. It is composed of the dimensions ‘being human’, ‘having control’, ‘relationship and belonging’ and ‘maintaining the individual self’. These dimensions seemed to be held in equilibrium by each individual. The importance of each may alter in response to threats to dignity such as advancing illness and how one is treated within it, in an attempt to cope and adapt. Caring for dignity is challenging because it involves balancing the multiple needs of both users and providers of palliative care and the different perceptions and dimensions of dignity itself.Keywords
This publication has 13 references indexed in Scilit:
- Dignity and aspirations denied: unmet health and social care needs in an inner-city areaHealth & Social Care in the Community, 2007
- Palliative Care EthicsPublished by Oxford University Press (OUP) ,1999
- The Concept of Quality of Life of Dying Persons in the Context of Health CareJournal of Pain and Symptom Management, 1999
- Phenomenological approaches to palliative care researchPalliative Medicine, 1998
- Dignity in situations of ethical difficulty in intensive careIntensive and Critical Care Nursing, 1997
- Support needs in the last year of life: patient and carer dilemmasPalliative Medicine, 1997
- Dignity and integrity at the end of lifeInternational Journal of Palliative Nursing, 1996
- The Philosophy and Practice of Patient Control in Hospice: The Dynamics of Autonomy versus PaternalismOMEGA - Journal of Death and Dying, 1995
- To die with dignitySocial Science & Medicine, 1992
- Phenomenologic Research as a Theoretic Initiative in Community Health NursingPublic Health Nursing, 1991