Differences in Preferences for Neonatal Outcomes Among Health Care Professionals, Parents, and Adolescents
Open Access
- 2 June 1999
- journal article
- research article
- Published by American Medical Association (AMA) in JAMA
- Vol. 281 (21) , 1991-1997
- https://doi.org/10.1001/jama.281.21.1991
Abstract
With recent improvements in survival of infants of borderline viability, the issue of whether to treat such infants actively continues to be debated.1-9 Both the Canadian Paediatric Society10 and the American Academy of Pediatrics11 have issued statements encouraging the involvement of parents in decision making, and in fact, to support the primacy of parental decisions for all infants at the threshold of viability. These statements were developed by health professionals using data on the mortality and morbidity of infants at each gestational age, without explicit consideration of the values and preferences of parents or members of society.Keywords
This publication has 15 references indexed in Scilit:
- Delivery Room Resuscitation Decisions for Extremely Premature InfantsPediatrics, 1998
- The Role of Parents in End-of-Life Decisions in Neonatology: Physicians' Views and PracticesPediatrics, 1998
- Death in the Intensive Care Nursery: Physician Practice of Withdrawing and Withholding Life SupportPediatrics, 1997
- Withholding and withdrawing life sustaining treatment in neonatal intensive care: issues for the 1990s.Archives of Disease in Childhood: Fetal & Neonatal, 1994
- Comprehensive assessment of the health status of extremely low birth weight children at eight years of age: Comparison with a reference groupThe Journal of Pediatrics, 1994
- Towards guidelines for withholding and withdrawal of life prolonging treatment in neonatal medicine.Archives of Disease in Childhood: Fetal & Neonatal, 1994
- Cognitive abilities and school performance of extremely low birth weight children and matched term control children at age 8 years: A regional studyThe Journal of Pediatrics, 1991
- Ethical issues in the nursery: Priorities versus limitsThe Journal of Pediatrics, 1990
- Measurement of health state utilities for economic appraisalJournal of Health Economics, 1986
- Application of Multi-Attribute Utility Theory to Measure Social Preferences for Health StatesOperations Research, 1982