An Analysis of Communication Following Newborn Screening for Cystic Fibrosis
- 1 April 2004
- journal article
- Published by Taylor & Francis in Health Communication
- Vol. 16 (2) , 197-205
- https://doi.org/10.1207/s15327027hc1602_4
Abstract
With the tremendous expansion of knowledge that will come from advances in the Human Genome Project, the question of how to effectively communicate genetic risk information will assume increasing importance. This article reports research intended to provide a descriptive foundation for future inquiry. Drawing on information from medical professionals and videotaped interactions of families whose infant has tested positive for cystic fibrosis, the authors present an analysis of the phases of communication following newborn screening. From this analysis, it can be seen that genetic counseling is best viewed as part of a larger process of risk communication.Keywords
This publication has 6 references indexed in Scilit:
- Uptake and Impact of Carrier Testing for Cystic FibrosisPublic Health Genomics, 1998
- Nutritional Benefits of Neonatal Screening for Cystic FibrosisNew England Journal of Medicine, 1997
- Genetic education and counselingPatient Education and Counseling, 1997
- Newborn Screening for Cystic Fibrosis in Wisconsin: Comparison of Biochemical and Molecular MethodsPediatrics, 1997
- Risk Perception and CommunicationAnnual Review of Public Health, 1993
- Risk Communication: An Emerging Area of Health Communication ResearchAnnals of the International Communication Association, 1992