Parents’ view of respite care services for families with children with disabilities in Sweden

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Abstract
In Sweden respite care is a legal right for families of children with disabilities. The Act Concerning Support and Service for Persons with Certain Functional Impairments (LSS) was passed in 1994. A previous study on respite care illuminated the municipalities’ view of the service. This article focuses on the parents’ view. The study is based on questionnaire responses from 141 families and interviews with 25 families. The results show that there is a widespread perception by families that there is not enough support and that the need for respite care is not met. There is also a lack of information about the service. More flexible, family‐oriented approaches are needed.

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