Patient and caregiver communications and decisions

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Abstract
Nevertheless, certain ethical considerations pertain to the management of patients with ALS, as with all patients. These include affirmation of the patient's autonomy, nonmalfeasance, and beneficence. Patients with ALS should be encouraged to participate actively in the decision-making process whenever possible, particularly in determining which diagnostic and treatment approaches they find neest ecoeptable. Every effort should be made to minimize any risk to the patient, and the optimal outcome that can be achieved should be sought, given the available options. With these caveats in mind, this review explores the key elements that should be considered in optimizing communication and caregiving in the management of patients with ALS.

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