Blurring lines
Open Access
- 16 July 2010
- journal article
- Published by Springer Nature in EMBO Reports
- Vol. 11 (8) , 579-582
- https://doi.org/10.1038/embor.2010.105
Abstract
Companies that offer direct-to-consumer genetic testing and conduct research are blurring the line between customers and research subjects. Should these companies adhere to the same ethical regulations as academic researchers?Keywords
This publication has 10 references indexed in Scilit:
- Statement of the ESHG on direct-to-consumer genetic testing for health-related purposesEuropean Journal of Human Genetics, 2010
- Selected Legislation and Jurisprudence OECD Guidelines on Human Biobanks and Genetic Research DatabasesEuropean Journal of Health Law, 2010
- Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and ProtectionPLoS Genetics, 2009
- Patients' Views on Identifiability of Samples and Informed Consent for Genetic ResearchAmerican Journal of Bioethics, 2008
- The Current Landscape for Direct-to-Consumer Genetic Testing: Legal, Ethical, and Policy IssuesAnnual Review of Genomics and Human Genetics, 2008
- Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping MicroarraysPLoS Genetics, 2008
- No Longer De-IdentifiedScience, 2006
- Genomic Research and Human Subject PrivacyScience, 2004
- A study of public opinion on the use of tissue samples from living subjects for clinical researchJournal of Clinical Pathology, 2004
- Consent to the use of stored DNA for genetics research: A survey of attitudes in the Jewish populationAmerican Journal of Medical Genetics, 2001