Population-Based Mammography Registry

Abstract
The objective of his infrastructure project was to expand a population-based mammography registry to 24 counties of eastern North Carolina (NC), an area with a large rural and black population. Mammography and pathology databases have been developed which allow linking of screening mammography assessments with cancer outcomes. Data is being collected directly from mammography facilities including demographic data, breast history data, reason for and findings on the screening mammogram, data on other radiologic studies necessary to resolve the screening assessment, and recommendations for follow-up. The pathology data from the NC Central Cancer Registry is received on a fast report system (weekly) for pathology diagnosed within the 24 counties, and on an annual basis for the remaining counties of the state. At the end of three years, there are 72 facilities actively participating and another 18 in the process of having data converted for transmission. There are 242,994 records representing 143,328 women from facilities in 37 counties. The age distribution of these women is 8% under 40, 31% 40-49, 27% 50-59, 19% 60-69, 15% greater than or equal 70. The racial distribution is 19% black, 79% white and 2% other. Five-hundred-one cancers have been identified following within 12 months of a screening mammogram. Cancer incidence by age and race, and performance indices are presented in this report.

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