How do AD patients and their caregivers decide whether to enroll in a clinical trial?
- 27 March 2001
- journal article
- Published by Wolters Kluwer Health in Neurology
- Vol. 56 (6) , 789-792
- https://doi.org/10.1212/wnl.56.6.789
Abstract
To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.Keywords
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