Privacy and Confidentiality in the Publication of Pedigrees

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Abstract
MEDICAL case descriptions may reveal personal information about subjects through verbal descriptions, photographs, and pedigree diagrams. Since biomedical journals are publically available, published case descriptions create a potential confict between the desire to share scientific information and the need to protect subject privacy and confidentiality. Because of the familial nature of genetic information and the large number of subjects involved, pedigree publication poses a particularly difficult set of problems for the protection of subject privacy and confidentiality.

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