Protecting genetic privacy
- 1 May 2001
- journal article
- Published by Springer Nature in Nature Reviews Genetics
- Vol. 2 (5) , 392-396
- https://doi.org/10.1038/35072029
Abstract
This article outlines the arguments for and against new rules to protect genetic privacy. We explain why genetic information is different to other sensitive medical information, why researchers and biotechnology companies have opposed new rules to protect genetic privacy (and favour anti-discrimination laws instead), and discuss what can be done to protect privacy in relation to genetic-sequence information and to DNA samples themselves.Keywords
This publication has 17 references indexed in Scilit:
- The Sequence of the Human GenomeScience, 2001
- Initial sequencing and analysis of the human genomeNature, 2001
- EscalatorChicago Review, 2000
- Which Jefferson Was the Father?Science, 1999
- Distress in individuals facing predictive DNA testing for autosomal dominant late-onset disorders: Comparing questionnaire results with in-depth interviewsAmerican Journal of Medical Genetics, 1998
- Environment Institute Lays Plans for Gene HuntScience, 1997
- Molecular Pathology, Informed Consent, and the Paraffin BlockDiagnostic Molecular Pathology, 1995
- Privacy Rules for DNA DatabanksJAMA, 1993
- The genetic analysis of human behavior: A new era?Social Science & Medicine, 1992
- Predictive testing for Huntington disease in Canada: Adverse effects and unexpected results in those receiving a decreased riskAmerican Journal of Medical Genetics, 1992