Development of a Model of Transitional Care for the HIV-Positive Child and Family

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Abstract
The provision of high-quality, cost-effective care to Human Immunodeficiency Virus (HIV)-infected adults and children is a national priority. During 1991 the number of infected children is expected to increase to over 3,000, with at least 2,000 additional cases manifesting some symptoms of HIV infection. Serious questions exist about the ability of these children's families to acquire the health care services that both they and their children require. This paper will present preliminary findings of a study that describes the physical, behavioral, and developmental responses of children who have a diagnosis of perinatally acquired HIV, as well as the caretaking concerns of the custodial family. Building on this work, a model of transitional home care for these children and their families using pediatric clinical nurse specialist (PCNS) follow-up care will be described.

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