Social pediatrics
- 1 March 1993
- journal article
- research article
- Published by Springer Nature in International Journal of Public Health
- Vol. 38 (2) , 83-89
- https://doi.org/10.1007/bf01318465
Abstract
Studies on children with special needs mainly concentrate on disease-oriented health problems and neglect the positive aspects of quality of life. In this study the quality of life of children with Cystic Fibrosis and Myelomeningocele, 951 children in all, in the five Nordic countries is compared to that of a random sample of 10,290 children. The aim of the study was to see how the issue of equity, a main objective of the WHO health for all policy, has been met in the Nordic countries. Quality of life is defined as one of the essential resources of a population in terms of external, inter-personal and personal conditions. The study shows that children with disabilities have, and perceive that they live in good material and socio-economic conditions. However, the personal psychological conditions are less favourable, which indicates that this is a priority area for future health policies.Keywords
This publication has 14 references indexed in Scilit:
- Disability in Children with Myelomeningocele A Nordic StudyActa Paediatrica, 1989
- Developing an international index of quality of life for children: The NICQL IndexJournal of the Royal Society of Health, 1983
- IMPACT OF HAEMOPHILIA ON CHILD-REARING PRACTICES AND PARENTAL CO-OPERATIONJournal of Child Psychology and Psychiatry, 1980
- Psychosocial Adjustment of Latency-Aged Diabetics: Determinants and Relationship to ControlPediatrics, 1980
- Lightening the Load for Parents of Children with DiabetesMCN: The American Journal of Maternal/Child Nursing, 1979
- Emotional adjustment of adolescents and young adults with cystic fibrosisThe Journal of Pediatrics, 1976
- Mothers, Brothers and Sisters of Patients with Spina BifidaDevelopmental Medicine and Child Neurology, 1973
- The psycho-social impact of hemophilia on the patient and his familySocial Science & Medicine (1967), 1972
- Adjustment Problems in Juvenile DiabetesPsychosomatic Medicine, 1967
- Familial responses to stress: The case of cystic fibrosisSocial Science & Medicine (1967), 1967