Sudden illness and biographical flow in narratives of stroke recovery
Open Access
- 1 March 2004
- journal article
- Published by Wiley in Sociology of Health & Illness
- Vol. 26 (2) , 242-261
- https://doi.org/10.1111/j.1467-9566.2004.00388.x
Abstract
The conceptual framework of biographical disruption has dominated studies into the everyday experience of chronic illness. Biographical disruption assumes that the illness presents the person with an intense crisis, regardless of other mitigating factors. However, our data suggests that the lives of people who have a particular illness that is notably marked by sudden onset are not inevitably disrupted. Extensive qualitative interviews were conducted with a sample of veteran non-Hispanic white, African-American, and Puerto Rican Hispanic stroke survivors, at one month, six months and twelve months after being discharged home from hospital. Narrative excerpts are presented to describe specific discursive resources these people use that offset the disrupting connotations of stroke. Our findings suggest a biographical flow more than a biographical disruption to specific chronic illnesses once certain social indicators such as age, other health concerns and previous knowledge of the illness experience, are taken into account. This difference in biographical construction of the lived self has been largely ignored in the literature. Treating all survivor experiences as universal glosses over some important aspects of the survival experience, resulting in poorly designed interventions, and in turn, low outcomes for particular people.Keywords
This publication has 28 references indexed in Scilit:
- The significance and consequences of having painful and disabled joints in older age: co‐existing accounts of normal and disrupted biographiesSociology of Health & Illness, 2002
- The Utility of Health States After StrokeStroke, 2001
- Ageing in an autobiographical contextAgeing and Society, 2000
- Experience of hypoglycemia among insulin dependent diabetics and its impact on the familySociology of Health & Illness, 1997
- Experience of hypoglycemia among insulin dependent diabetics and its impact on the family.Sociology of Health & Illness, 1997
- Illness and narrativeSociology of Health & Illness, 1997
- The sociology of chronic illness: a review of research and prospectsSociology of Health & Illness, 1991
- The Experience Of Living With Parkinsonʼs DiseaseJournal of Neuroscience Nursing, 1991
- Coming to terms with chronic illness: The negotiation of autonomy in rheumatoid arthritisInternational Disability Studies, 1988
- A new method of classifying prognostic comorbidity in longitudinal studies: Development and validationJournal of Chronic Diseases, 1987