A National Genetic-Disease Program: Some Issues of Implementation

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Abstract
A NATIONAL genetic-disease program was established with the enactment of the Health Research and Health Services Amendments of 1976.1 Title IV of the Amendments, the National Sickle-Cell Anemia, Cooley's Anemia, Tay-Sachs and Genetic Diseases Act, replaces Title XI of the Public Health Service Act, which deals only with sickle-cell and Cooley's anemias. The new act provides for a national program of basic and applied research, research training, testing, counseling and information and education programs for genetic diseases, including sickle-cell and Cooley's anemias, Tay-Sachs diseases, cystic fibrosis, dysautonomia, hemophilia, retinitis pigmentosa, Huntington's chorea and muscular dystrophy.The act authorizes the Department . . .

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