Suspended Mothering: Women’s Experiences Mothering an Infant with a Genetic Anomaly Identified at Birth

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Abstract
Purpose:To develop an understanding of the experiences of women who give birth to an infant with a genetic anomaly not identified during the prenatal period.Design:Exploratory design using selected qualitative methods.Sample:Seven mothers of liveborn infants with a genetic anomaly characterized by physical attributes evident at birth.Main Outcome Variable:Mother’s expressions of suspended mothering.Results:Two themes emerged that characterize the experience of suspended mothering: diminished maternal role and false protection.Practice Recommendations:Facilitating maternal involvement in decision making requires giving women unbiased information in a supportive manner.

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