Genetic Privacy, Discrimination, and Social Policy: Challenges and Dilemmas

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Abstract
Advances in genetics will produce substantial medical benefits but may also result in genetic discrimination and loss of privacy. Although these and other downside risks of genetics are mainly conjectural so far, legislators are already anticipating the problems and attempting to prevent their occurrence. The legal measures being adopted have substantial limitations, however. Many are incomplete, impracticable, or counterproductive, and the focus on genetics is unduly narrow. This article presents a critical analysis of the controls on use and disclosure of genetic information that have been adopted in the United States.

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